Meg and Kristin finally made it home, but not without some drama. It was noted by the doctors that Meg had a heart murmur. They and I thought it was a PDA (patent ductus arteriosis) which is a remnant of fetal circulation. It is common and usually closes in a day or so. The docs decided to get an echocradiogram to look at her heart and make sure there was nothing else going on. Well the doctors were partially right.
It turns out Meg did have a PDA, but that was only part of the story. The echo also showed she has a couple other heart defects. She has a ventricular septal defect. This means there is a hole in heart between the two ventricles. This allows blood to cross over. Depending on the pressures it can cause deoxygenated blood crossing over and going through the peripheral circulation without going through the lungs first. It is a small hole as far as we can tell now, and has about an 80% chance of closing on it’s own by a year or 2.
She also has a dysplastic pulmonic valve. This is the valve between the right ventricle and the lungs. It is just not a good valve. It causes some obstruction of the blood flowing out, but then also doesn’t close well so some blood can flow back. This may not be too much of a problem either. As she gets bigger the obstruction may decrease. No way to tell right now. She may ultimately need to have a balloon placed in there to expand it.
So we were surprised with the news, needless to say. The cardiologist told us not to worry too much. We would just follow up with him in a week or 2 and then see how things go. She has been doing fairly well. The problem is that when she eats sometimes she turns blue. She has been getting better, but the first couple times that happened it sort of freaked us out. Kristin called the cardiologist who said not to worry. She has been doing it less frequently now, which is good. She is just our little smurf. We hope she grows out of most of this, but we will just have to wait and see.
You can see more picture of our beautiful girl, here
Categories: Family
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